World Spina Bifida and Hydrocephalus Day (WSBHD), celebrated on 25 October, unites people worldwide to raise awareness and drive action for those affected by these often-overlooked conditions. This year’s theme, “Accelerate for Action,” calls for accessible healthcare, inclusion, and equal opportunities for all. Child-Help joins global partners in celebrating resilience and advocating for a world where no one with Spina Bifida or Hydrocephalus is left behind.
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Every September, we raise awareness of hydrocephalus, one of the most common yet least understood neurological conditions affecting children worldwide.
As part of this month of awareness, we are glad to participate in the World Hydrocephalus Conference, which will bring together families, medical professionals, and advocates to share knowledge and strengthen the fight against hydrocephalus.
During CIC Week, medical students from KCMC joined the House of Hope Moshi to deepen their understanding of spina bifida and hydrocephalus—gaining hands-on experience, connecting with families, and embodying the spirit of SHARE.
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In the quiet hills of Mitooma district, South Western Uganda, lives a remarkable boy whose story is a powerful reminder of what children can achieve when they’re surrounded by love, support, and the right care. Atwijukire Matthew, a six-year-old boy born with hydrocephalus, has overcome early developmental challenges and now shines as a beacon of resilience. Thanks to the unwavering dedication of his mother, the guidance of a fellow parent, and the continued support of the OURS program, Matthew’s path—once filled with uncertainty—has become a journey of growth, strength, and hope.
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The Spirates—Manue, Benoit, and Nicolas—are living proof. All three have spina bifida, and they embarked on an extraordinary adventure: sailing from Saint-Malo, France, to Ireland, and then to Scotland, where they met with local Spina Bifida associations.
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In many African societies, the birth of a child with a disability often deepens the already challenging position of women.
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On Friday, March 28, 2025, a devastating earthquake measuring 7.7 on the Richter scale struck Myanmar. The consequences were dramatic: hundreds dead, thousands injured and a health care system unable to cope with the influx of victims. The emergency is unprecedented and requires urgent aid
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In the countries of the Global South where Child-Help is active, there is often a lack of basic medical equipment to enable children with spina bifida and hydrocephalus to receive the care they need. A mobile ultrasound device can make all the difference here – it enables the early detection of kidney damage (hydronephrosis), the diagnosis of hydrocephalus and also helps to recognise other internal conditions at an early stage.
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Pierre Mertens, founder and president of Child-Help International, will present his deeply personal book, Liesje, in Bratislava. The event will take place at the historic Faust Hall in the city center, bringing together individuals and organizations dedicated to inclusion and disability awareness.
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For our project in partnership with Bethany Kids in Kenya, we are looking for an external evaluator to assess the impact, effectiveness, efficiency and sustainability of the project.
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This €10,500 grant will allow our partner to educate medical staff, parents and other carers of children with spina bifida and hydrocephalus about the lifelong (after)care of children with these conditions.
The Bethany Kids team sent us the gripping report of their home visit to Patrick Njoroge in Dandora, close to the capital Nairobi.
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We are happy and proud to announce this year’s winner of the Child-Help Award 2023.
The winner is HOPE SBH, a support group from Ethiopia, and the award was given to the executive director, Beza Haile, at the workshop that Child-Help organized in Kizimkazi, Zanzibar during 11th – 13th June.
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