Each year, Child-Help International (CHI) presents an award to someone who has made an exceptional difference for children and adults living with spina bifida and hydrocephalus. In 2025, the focus was explicitly on national networks for change—strong, locally rooted networks that drive sustainable, structural impact.
For the first time, the award was presented to a duo: Ruth Nalugya and her 12-year-old daughter Blessing Kerstin Akuzwe. Mother and daughter together represent a powerful team for change.
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For the launch of Covers for the World, a long-term artistic and social engagement in which Pierre Mertens mobilizes more than 4,000 drawings to support the development of a knowledge centre for affordable and accessible care, he realized together with curator Edith Doove an exhibition at the SHARE Knowledge Centre in Moshi.
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Moshi (Tanzania) – On 3 December 2025, Child-Help will open the new SHARE Global Knowledge Centre for Accessible Care in Moshi – an event of great significance for families, professionals and people affected by spina bifida and hydrocephalus worldwide. The opening will create an international hub of hope, knowledge exchange, networking and practical support in Moshi. The central importance of this opening lies in the fact that it brings together medical care, family support, international cooperation and local responsibility in the long term – a decisive step towards accessible and affordable care.
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Financial Manager ensures robust financial management, transparency, and compliance across all Child-Help affiliated members and partners. Financial Manager provides strategic financial leadership, delivers accurate and timely reporting, and drives financial sustainability in alignment with CHI’s mission and global operations.
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World Spina Bifida and Hydrocephalus Day (WSBHD), celebrated on 25 October, unites people worldwide to raise awareness and drive action for those affected by these often-overlooked conditions. This year’s theme, “Accelerate for Action,” calls for accessible healthcare, inclusion, and equal opportunities for all. Child-Help joins global partners in celebrating resilience and advocating for a world where no one with Spina Bifida or Hydrocephalus is left behind.
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Every September, we raise awareness of hydrocephalus, one of the most common yet least understood neurological conditions affecting children worldwide.
As part of this month of awareness, we are glad to participate in the World Hydrocephalus Conference, which will bring together families, medical professionals, and advocates to share knowledge and strengthen the fight against hydrocephalus.
During CIC Week, medical students from KCMC joined the House of Hope Moshi to deepen their understanding of spina bifida and hydrocephalus—gaining hands-on experience, connecting with families, and embodying the spirit of SHARE.
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In the quiet hills of Mitooma district, South Western Uganda, lives a remarkable boy whose story is a powerful reminder of what children can achieve when they’re surrounded by love, support, and the right care. Atwijukire Matthew, a six-year-old boy born with hydrocephalus, has overcome early developmental challenges and now shines as a beacon of resilience. Thanks to the unwavering dedication of his mother, the guidance of a fellow parent, and the continued support of the OURS program, Matthew’s path—once filled with uncertainty—has become a journey of growth, strength, and hope.
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The Spirates—Manue, Benoit, and Nicolas—are living proof. All three have spina bifida, and they embarked on an extraordinary adventure: sailing from Saint-Malo, France, to Ireland, and then to Scotland, where they met with local Spina Bifida associations.
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In many African societies, the birth of a child with a disability often deepens the already challenging position of women.
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On Friday, March 28, 2025, a devastating earthquake measuring 7.7 on the Richter scale struck Myanmar. The consequences were dramatic: hundreds dead, thousands injured and a health care system unable to cope with the influx of victims. The emergency is unprecedented and requires urgent aid
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In the countries of the Global South where Child-Help is active, there is often a lack of basic medical equipment to enable children with spina bifida and hydrocephalus to receive the care they need. A mobile ultrasound device can make all the difference here – it enables the early detection of kidney damage (hydronephrosis), the diagnosis of hydrocephalus and also helps to recognise other internal conditions at an early stage.
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